Marfan Syndrome and Related Conditions
Choose Hoag’s Multidisciplinary Team for Your Care
Individuals with Marfan syndrome and related connective tissue conditions need a lifelong healthcare partner. Hoag is here to provide expert diagnosis, treatment and ongoing surveillance to ensure your health is a top priority.
With one of the few cardiac subspecialists in the world that focuses on individuals and families with these various syndromes, and a team of cardiac surgeons trained in aortic surgical care, along with additional cardiac and physician specialists, Hoag offers an integrated, best-in-class team. Our clinic nurse navigator will be your partner and will guide you through the challenges of living with Marfan syndrome, Vascular Ehlers-Danlos syndrome (VEDS), Loeys-Dietz syndrome (LDS), and other genetic aortic and vascular conditions.
World Renowned Marfan Specialist David Liang, M.D., Ph.D.
David Liang, M.D., Ph.D. is one of the few cardiac specialists in the world who focuses his care on individuals and their families with Marfan syndrome and related connective tissue conditions.
Hoag Proudly Hosts The Marfan Foundation E3 Conference - July 7-10, 2022
Bringing together individuals and families with Marfan syndrome and other related conditions from across the U.S. and abroad, the event will provide an opportunity to learn about these conditions from leading medical experts, as well as hear about new medical and genetic research.
Marfan Syndrome & Related Conditions Treated
Hoag is here to help you and your family relieve stress as your partner on this journey. We bring together a team of specialists clinically trained in these conditions to provide complete care, from diagnosis to treatment to ongoing surveillance. Conditions treated include:
- Marfan syndrome
- Loeys-Dietz syndrome
- Vascular Ehlers-Danlos syndrome
- Familial thoracic aortic aneurysm and dissection
Patient Stories
Gain hope and insight as you read the personal accounts from people who’ve been on a journey similar to yours. Perhaps you’ll have a story of your own one day that will inspire others.
A Marfan Syndrome Patient Finds Confidence, Gratitude at Hoag
“Just knowing my son would be under the care of this amazing dream team of doctors was like winning the…
Read MorePatient with Rare Connective Tissue Disorder Grateful to Hoag
It can be difficult to visual what Hoag’s “multidisciplinary approach” to patient care really means. But when Lauren Wiepking hears…
Read MoreLong Beach Woman with Rare Genetic Condition Finds Hope at Hoag
Kaitlin Jones works to find joy in the little things. Jones, 31, said it’s a priority of hers to look…
Read MoreState-of-the-art facilities and technology
Our leading-edge facilities provide the gold standard, industry-leading approach to care. With our skilled team of experts in their fields, Hoag is Orange County’s only onsite 3D Imaging Lab.
Elaine & Robert Matranga Aortic Center
The Elaine & Robert Matranga Aortic Center at Hoag is a comprehensive program that provides a multidisciplinary, integrated team approach to caring for complex aortic disease.
Meet the Team
The Hoag Marfan Syndrome and Related Conditions Program in the Elaine & Robert Matranga Aortic Center is led by Dr. David Liang and supported with a multidisciplinary specialty network of physicians and nurses.
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David H. Liang, MD Physician Leader, Program Director, Hoag Marfan Syndrome & Related Conditions Program
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Anthony D. Caffarelli, M.D. Physician Leader, Newkirk Family Endowed Chair in Aortic Care, Director, Elaine & Robert Matranga Aortic Center, Director, Hoag Cardiac Surgery
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Asad A. Shah, MD Cardiothoracic Surgeon, Physician Leader, Co-Director, Hoag Cardiac Surgery
We are here for you
The Jeffrey M. Carlton Heart & Vascular Institute is one of the preeminent cardiovascular centers on the West Coast, and is well respected for delivering quality care and exceptional patient outcomes in the areas of valve disease, vascular disease and cardiac arrhythmia.