Skip to main content
  • Pay Your Bill
  • Donate opens in new window
  • Careers
  • Contact Us
Hoag
  • Specialties & Services
    Our institutes

    Hoag Family Cancer Institute

    View Institute
    • Find Your Cancer Type
      • View All Cancers Treated
      • Bladder Cancer
      • Brain Tumor
      • Breast Cancer
      • Colorectal Cancer
      • Endocrine Tumors
      • Gynecologic Cancer
      • Head & Neck Cancer
      • Lung Cancer
      • Pancreatic Cancer
      • Prostate Cancer
      • Renal (Kidney) Cancer
      • Skin Cancer/Melanoma
    • Treatments & Services
      • Applied Genomics
      • Cancer Trials
      • Cell Therapy
      • da Vinci® Robotic Surgery
      • Gamma Knife
      • Genetic Counseling
      • High Risk
      • Infusion Services
      • Molecular Imaging
      • Radiation Oncology

    Hoag Digestive Health Institute

    View Institute
    • Programs
      • Advanced Endoscopy
      • Bariatric Surgery Weight Loss
      • Colorectal
      • Foregut (Esophagus & Stomach)
      • Inflammatory Bowel Disease (IBD)
      • Liver
      • Midgut (Pancreas, Biliary & Gallbladder)
      • Motility

    Jeffrey M. Carlton Heart & Vascular Institute

    View Institute
    • Programs
      • Aortic Program
      • Coronary Artery Disease Program
      • General Cardiovascular Health
      • Heart Failure Program
      • Heart Rhythm Program
      • Heart Valve Program
      • Marfan Syndrome Clinic
      • Vascular Program
    • Treatment & Services
      • Aortic Disease Treatment & Management
      • Cardiac Arrhythmia Treatment & Management
      • Cardiac Rehabilitation
      • Coronary Artery Disease Treatment & Management
      • Heart Failure Treatment & Management
      • Heart Valve Disease Treatment & Management
      • Vascular Disease Treatment & Management

    Pickup Family Neurosciences Institute

    View Institute
    • Programs
      • Acute Rehabilitation
      • Addiction Medicine
      • ASPIRE (Teen Mental Health, 13-18)
      • Brain Tumor
      • Chronic Pain & Neuropathy
      • Concussion
      • Epilepsy
      • Headache
      • Memory & Cognitive Disorders
      • Multiple Sclerosis & Neuroimmunology
      • Parkinson’s & Movement Disorders
      • Skull Base & Pituitary Tumor
      • Sleep Health
      • Stroke
      • Young Adult Mental Health (18-26)
    • Diagnostics & Treatment
      • Epilepsy Monitoring Unit
      • Gamma Knife
      • Interventional Neuroradiology
      • MRI / 3T / CT
      • EEG/EMG (Neurophysiology)
      • Neuroradiology
      • Neuro Rehabilitation
      • PET / CT
      • Tomotherapy

    Hoag Orthopedic Institute

    View Institute
    • Programs
      • Elbow
      • Foot & Ankle
      • Hand & Wrist
      • Hip
      • Knee
      • Shoulder
      • Spine
      • Trauma
    • Services
      • Sports Medicine
      • Physical Therapy
      • Diagnostics
      • Sarcoma
      • Travel Program
      • International Patients

    Hoag Spine Institute

    View Institute
    • Conditions
      • Chronic Neck or Back Pain
      • Degenerative Disc Disease (DDD)
      • Herniated Disc/Lumbar Disc Disease
      • Kyphosis
      • Lower Back Pain
      • Myelopathy
      • Neck Pain (Cervical Pain)
      • Nerve Compression
      • Osteoporosis
      • Osteoarthritis
      • Radiculopathy (Pinched Nerve)
      • Scoliosis
      • Sciatica
      • Spinal Deformity
      • Spinal Tumors
      • Spinal Stenosis
      • Spinal Fractures
      • Spondylolisthesis
      • Tailbone Pain
      • Whiplash

    Hoag Women’s Health Institute

    View Institute
    • Breast Health
      • Meet the Team
      • Locations
      • Imaging
      • Diagnosis
      • Surgery
      • Chemotherapy
      • Radiation Therapy
      • High Risk
    • Gynecologic Health
      • Gynecologic Cancer Program
      • Gynecologic & Pelvic Health
      • Pelvic Health
    • Maternal Child Health
      • Pregnancy
      • Prenatal Classes / OB Education
      • Pre-Registration
      • Virtual Maternity Tour
      • NICU
      • Support Services
      • Mental Health
    • Wellness & Prevention
      • Hoag for Her Center for Wellness
      • Integrated Services
      • Meet Our Team
      • Classes

    Other Programs & Services

    View All
    • Acute Rehabilitation
    • Addiction Medicine
    • Breast Program
    • Care Coordination
    • Clinical Research
    • Concierge Medicine
    • Mary & Dick Allen Diabetes Center
    • End of Life Care
    • Executive Health
    • Functional Medicine
    • Hoag At Home
    • Hoag Endoscopy Center
    • Hoag Genetic Counseling
    • Hoag Prime
    • Melinda Hoag Smith Center for Healthy Living
    • Mental Health Services
    • Nurse Navigator
    • Occupational Therapy
    • Outpatient Lab
    • Outpatient Rehabilitation Services
    • Palliative Care
    • Pelvic Health
    • Physical Therapy
    • Pregnancy & Infant Loss
    • Radiology & Imaging Services
    • Respiratory Care
    • Robotics
    • Sleep Health
    • Smoking Cessation
    • Speech Therapy
    • Spine Institute
    • Spiritual Care
    • Sports Medicine
    • Thyroid

    Specialties & Services

    Hoag is the highest ranked hospital in Orange County. Learn more about our top rated Institutes and services in Southern California.

    View all Specialties & Services

    View All
    • Find Your Cancer Type
      • View All Cancers Treated
      • Bladder Cancer
      • Brain Tumor
      • Breast Cancer
      • Colorectal Cancer
      • Endocrine Tumors
      • Gynecologic Cancer
      • Head & Neck Cancer
      • Lung Cancer
      • Pancreatic Cancer
      • Prostate Cancer
      • Renal (Kidney) Cancer
      • Skin Cancer/Melanoma
    • Treatments & Services
      • Applied Genomics
      • Cancer Trials
      • Cell Therapy
      • da Vinci® Robotic Surgery
      • Gamma Knife
      • Genetic Counseling
      • High Risk
      • Infusion Services
      • Molecular Imaging
      • Radiation Oncology

    View All
    • Programs
      • Advanced Endoscopy
      • Bariatric Surgery Weight Loss
      • Colorectal
      • Foregut (Esophagus & Stomach)
      • Inflammatory Bowel Disease (IBD)
      • Liver
      • Midgut (Pancreas, Biliary & Gallbladder)
      • Motility

    View All
    • Programs
      • Aortic Program
      • Coronary Artery Disease Program
      • General Cardiovascular Health
      • Heart Failure Program
      • Heart Rhythm Program
      • Heart Valve Program
      • Marfan Syndrome Clinic
      • Vascular Program
    • Treatment & Services
      • Aortic Disease Treatment & Management
      • Cardiac Arrhythmia Treatment & Management
      • Cardiac Rehabilitation
      • Coronary Artery Disease Treatment & Management
      • Heart Failure Treatment & Management
      • Heart Valve Disease Treatment & Management
      • Vascular Disease Treatment & Management

    View All
    • Programs
      • Acute Rehabilitation
      • Addiction Medicine
      • ASPIRE (Teen Mental Health, 13-18)
      • Brain Tumor
      • Chronic Pain & Neuropathy
      • Concussion
      • Epilepsy
      • Headache
      • Memory & Cognitive Disorders
      • Multiple Sclerosis & Neuroimmunology
      • Parkinson’s & Movement Disorders
      • Skull Base & Pituitary Tumor
      • Sleep Health
      • Stroke
      • Young Adult Mental Health (18-26)
    • Diagnostics & Treatment
      • Epilepsy Monitoring Unit
      • Gamma Knife
      • Interventional Neuroradiology
      • MRI / 3T / CT
      • EEG/EMG (Neurophysiology)
      • Neuroradiology
      • Neuro Rehabilitation
      • PET / CT
      • Tomotherapy

    View All
    • Programs
      • Elbow
      • Foot & Ankle
      • Hand & Wrist
      • Hip
      • Knee
      • Shoulder
      • Spine
      • Trauma
    • Services
      • Sports Medicine
      • Physical Therapy
      • Diagnostics
      • Sarcoma
      • Travel Program
      • International Patients

    View All
    • Conditions
      • Chronic Neck or Back Pain
      • Degenerative Disc Disease (DDD)
      • Herniated Disc/Lumbar Disc Disease
      • Kyphosis
      • Lower Back Pain
      • Myelopathy
      • Neck Pain (Cervical Pain)
      • Nerve Compression
      • Osteoporosis
      • Osteoarthritis
      • Radiculopathy (Pinched Nerve)
      • Scoliosis
      • Sciatica
      • Spinal Deformity
      • Spinal Tumors
      • Spinal Stenosis
      • Spinal Fractures
      • Spondylolisthesis
      • Tailbone Pain
      • Whiplash

    View All
    • Breast Health
      • Meet the Team
      • Locations
      • Imaging
      • Diagnosis
      • Surgery
      • Chemotherapy
      • Radiation Therapy
      • High Risk
    • Gynecologic Health
      • Gynecologic Cancer Program
      • Gynecologic & Pelvic Health
      • Pelvic Health
    • Maternal Child Health
      • Pregnancy
      • Prenatal Classes / OB Education
      • Pre-Registration
      • Virtual Maternity Tour
      • NICU
      • Support Services
      • Mental Health
    • Wellness & Prevention
      • Hoag for Her Center for Wellness
      • Integrated Services
      • Meet Our Team
      • Classes

    View All
    • Acute Rehabilitation
    • Addiction Medicine
    • Breast Program
    • Care Coordination
    • Clinical Research
    • Concierge Medicine
    • Mary & Dick Allen Diabetes Center
    • End of Life Care
    • Executive Health
    • Functional Medicine
    • Hoag At Home
    • Hoag Endoscopy Center
    • Hoag Genetic Counseling
    • Hoag Prime
    • Melinda Hoag Smith Center for Healthy Living
    • Mental Health Services
    • Nurse Navigator
    • Occupational Therapy
    • Outpatient Lab
    • Outpatient Rehabilitation Services
    • Palliative Care
    • Pelvic Health
    • Physical Therapy
    • Pregnancy & Infant Loss
    • Radiology & Imaging Services
    • Respiratory Care
    • Robotics
    • Sleep Health
    • Smoking Cessation
    • Speech Therapy
    • Spine Institute
    • Spiritual Care
    • Sports Medicine
    • Thyroid
  • Find a Doctor
  • Locations
  • Patients & Visitors
  • Resources
    • Education
      • Classes
      • Empowered by Hoag Blog
      • Podcasts
      • Corporate Wellness
      • Volunteer
    • Resources
      • Advance Care Planning
      • Seniors / Medicare
      • Support Groups
      • For Medical Professionals
      • Health Risk Assessments
      • Clinical Research
      • For Brokers, Agents & Employers
    • Innovation at Hoag
      • Hoag Compass
      • Virtual Reality Program
  • About Hoag
    • Hoag Health Network
      • About Us
      • Leadership
      • Awards
      • Corporate Information
      • Community Benefit
      • Nursing
      • Graduate Medical Education
      • Culture of Excellence
    • News & Publications
      • Empowered by Hoag Blog
      • News
      • Hoag for Life
      • Hoag In Your Community
      • Press Room

  • Pay Your Bill
  • Donate opens in new window
  • Careers
  • Contact Us
Hoag

Search Suggestions

  • Find a doctor
  • Covid19
  • Visiting Hours
Header

Filter Stories By



OR

Pro-Active Patient of Lewy Body Disease Experiencing Success

July 29, 2015

Steve Heins tried to cover up his symptoms of Lewy Body Disease, but his Eagle Scout son, Robert, was not about to let his father lose his mind.

Steve’s wife, Gincy, will never forget the day – her birthday, Oct. 11, 2009 – when 12-year-old Robert came home and revealed to his mother that dad could not remember the way home driving through the neighborhood streets.

“I didn’t think Robert had caught on that I had gotten lost on the way home (with two other adults sitting in the back of the car, after the group had been exploring possible Eagle Scout projects),” Steve said. “I tried to pretend I knew what I was doing, then I asked him, ‘What’s the best way to get home?’ I tried to make it seem as if nothing had happened, and I did the best I could to backpedal and cover things up. But my son ratted me out.”

While that day changed the Heins’ lives, it wasn’t the first time Steve had been questioned about losing track of time, forgetting a simple name or place, or displaying the inability to function with the most basic computer tasks, even though it was something he had been doing for several years at his job at the Happiest Place on Earth.

Steve, you see, had been a gifted designer and mechanical engineer, first for McDonnell Douglas, then Boeing, and then as a Planner for the Planning Department at Disneyland, where his fingerprints are everywhere on the rides and attractions. Steve had worked to make them better, safer and more enjoyable for the millions of worldwide visitors. “I have played a game of basketball inside the Matterhorn,” he said. “I’ve sat on top of Splash Mountain with a cup of coffee and watched the sun rise.”

Steve’s supervisor noticed that his employee was struggling to remember times, places and people, not ordinary behavior in such an intelligent person, and his boss began documenting Steve’s lapses in a notebook.

Steve’s boss apparently had a family member who suffered from a debilitating disease and he saw a problem in Steve. Steve kept trying to hide the warning signs, until he finally went to his doctor after the encounter with his son on his wife’s 49th birthday.

“I feel luckier than heck that he was there,” Steve said of his former boss. “One of the problems was that I wanted to ignore it and cover it up.”

The Heins, who live in Cypress, wanted a second opinion of Steve’s Mild Cognitive Impairment (MCI) diagnosis and decided to visit Dr. William Shankle at Hoag Memorial Hospital Presbyterian in Newport Beach. Dr. Shankle is the Program Director for Memory and Cognitive Disorders at Hoag Neurosciences Institute. They selected Dr. Shankle because they heard other people in their support group speak highly of Dr. Shankle, and they decided to go see him for a second opinion. About half the couples in their support group, Gincy said, are patients of Dr. Shankle.

In February 2011, Dr. Shankle diagnosed Steve with Mild Cognitive Impairment possibly due to Lewy Body Disease, which “is a cross between Alzheimer’s Disease and Parkinson’s Disease,” Gincy said. But according to Steve, the disease has been stabilized since taking the prescribed medications, a dozen pills a day, including a multiple vitamin, and following all the instructions of the Orange County Vital Aging Program (OCVAP)​ at Hoag Neurosciences Institute.

“With Mild Cognitive Impairment, there is a certain percentage of people who get Alzheimer’s Disease, a certain percentage who become stable, and a certain percentage who improve,” said Steve, who was on disability for a year, before retiring. “I think being stable is a good place to start.”

At 58, he desires to live as much of his life as possible without Lewy Body Disease’s negative effects, and part of the plan includes taking classes and participating in activities that cause his brain to work in different ways. Steve signs up for classes at local community colleges in art, painting, sheet metal, auto body management and Spanish. He went fly fishing in Mammoth for five days to improve his hand-eye coordination.

“They say we only use 10 percent of our brain, so I say let me try to use another 10 percent of my brain that’s not damaged,” said Steve, who is fast becoming a Hoag model patient for dealing with the challenges of MCI. “I’m trying to do a lot of different things I’ve never done before to make new impressions on the brain. Maybe I can develop a part of the brain that I’m not using. So far, everything I’ve tried I’ve been successful at it.”

Since Steve’s success in helping to stabilize his Lewy Body Disease, his appointments with Dr. Shankle have been reduced to just once every four to six months, an improvement from once every four months.

Among other pro-active endeavors, Steve, who recently learned how to weld and manufacture barbecues, is signed up for painting, Spanish and acting classes.

“The painting class will cause me to learn how to paint, and I’ve never done that before,” Steve said. “And I’m taking an acting class, so I can learn how to act more normal, so people really can’t tell I have a problem.”

“I can only hope that I will be able to improve the outcome of these brain conditions,” said Dr. Shankle, a board certified neurologist, specializing in the diagnosis, treatment and management of Alzheimer’s Disease and Related Disorders (ADRD).

“Lewy Body Disease is similar to Parkinson’s Disease except that difficulties with thinking begin as early as the movement difficulties. In contrast, Alzheimer’s Disease does not show the slowing of movement, blank facial stare, shortening of stride, and loss of balance that is typical of Lewy Body and Parkinson’s Disease. In Lewy Body Disease, the brain lesions, called Lewy Bodies, accumulate first in the visual areas of the brain and in the brainstem. These lesions cause the earliest clinical changes, which include a marked fluctuation in the level of alertness or confusion during the day, slowing of movement, loss of balance, visual difficulties such as hallucinations, difficulty recognizing objects, faces or places, and greater difficulty with eye movements during reading, plus difficulties with complex task performance, such as cooking, shopping, driving, managing finances, doing mental calculations, managing a household, doing favorite pastimes. In contrast to Alzheimer’s Disease, memory is not as severely affected early on.”

Dr. Shankle co-founded the Alzheimer’s Research Clinic at University of California, Irvine, in 1987 and served as a clinical director for 10 years. Following that endeavor, he initiated a community based dementia program, the Shankle Clinic, in 1997 to deliver his medical knowledge and share his personal experiences as a caregiver to more patients and families.

“Of all dementing disorders, Lewy Body Disease produces the largest decrease in the neurotransmitter, acetylcholine, which is involved in many of the aforementioned skills and abilities,” Dr. Shankle said. “Because of this, increasing acetylcholine can produce significant improvements in cognition and function. The neurotransmitter, dopamine, is more variably affected. Sometimes, the use of Azilect or Mirapex or other dopamine agonists, will improve cognition and function. Unlike Alzheimer’s Disease, a treatment that delays progression has not been conclusively identified. However, it is worth trying Exelon to increase acetylcholine, Azilect and/or Mirapex to increase dopamine, plus daily physical exercise for 30 or more minutes, and continued brain exercise, particularly in the visual and executive function domains. Research may end up showing that this ‘cocktail’ approach can delay progression of Lewy Body Disease.”

“We also have a small series of Lewy Body Disease patients who have been treated with intravenous immunoglobulin who showed stabilization of their condition for years. This series of patients was not a double blind, placebo-controlled, randomized clinical trial, so it does not formally meet the most stringent criteria for demonstrating a disease delaying effect. However, I have not previously seen stabilization for years in Lewy Body Disease patients, so it is suggestive. Some basic science evidence supporting a disease-modifying effect is that the IgG antibodies in intravenous immunoglobulin therapy have been shown to bind to mis-folded proteins of alpha synuclein, which are hypothesized to be part of the cause of the progression of Lewy Body Disease.” By Richard Dunn

Tags: Story,Neurosciences,Family,Mental Health

What's Trending

Postpartum Bleeding Red Flags You Shouldn't Ignore
June 24, 2019
What Happens to Relationships When Sex Hurts
November 7, 2019
How A Mediterranean Diet Can Make You(r Brain) Look 19 Years Younger
May 3, 2023

Recently Written

Hoag Recognized as 2025 Top Hospitals for Patient Experience by Healthgrades
May 15, 2025
Ask the Doctor: Spring Allergies
May 14, 2025
Skin Cancer Prevention: Answers to 3 Common Questions
May 13, 2025
Facebook Twitter LinkedIn

YOU MAY ALSO LIKE

May 14, 2025
Ask the Doctor: Spring Allergies
May 13, 2025
Skin Cancer Prevention: Answers to 3 Common Questions
Hoag CFO Andrew Guarni Recognized as 2025 CFO of the Year
May 9, 2025
Marilyn Larsen Named Hoag’s 2025 Nurse of the Year
Hoag Empowers New Mom to Advocate for Her Baby–And for Others
The Heart of Healing: Celebrating Hoag’s Moms
May 8, 2025
Women Deserve to Prioritize Their Health — Without Guilt
April 30, 2025
Hoag’s Commitment to Innovation Creates New Paths for Parkinson’s Treatment

Sign up for our Newsletter

  • This field is for validation purposes and should be left unchanged.
Hoag

Need to ask a question?
Contact Us

Quick Links

  • COVID-19 Resources
  • Appointments
  • Find a Doctor
  • Locations
  • Federal Transparency in Coverage Rule
  • Price Transparency
  • CMS Open Payments Notice
  • Donate
  • Online Bill Payment
  • Hoag Connect MyChart

Patients & Visitors

  • Infection Prevention
  • Health Insurance
  • Patient & Visitor Info

About Hoag

  • About Us
  • Awards & Accreditations
  • News
  • Community Benefit
  • Hoag Orthopedic Institute
  • Hoag Medical Group
  • Careers
  • Legal

Education & Resources

  • Classes
  • Corporate Wellness
  • Support Groups
  • Volunteer
  • Clinical Research
  • For Medical Professionals
  • Brokers, Agents & Employers

© 2025 Hoag, All Rights Reserved.

Legal

×

Booking a DEXA appointment with Hoag requires a doctor's order

If you don’t have a copy of your doctor's order at the time of the appointment, your appointment might have to be rescheduled or cancelled.

Important

  • You should not have had any nuclear medicine, barium, or iodine studies 10 days before your DEXA scan.
  • The appointments shown below for DEXA scans are for the purpose of measuring bone density. For DEXA scans for body fat analysis, please use the numbers below to schedule an appointment:
    • Newport Imaging Center (Hoag Affiliated Partner): 949-721-8191
    • Tustin Imaging Center (Hoag Affiliated Partner): 714-477-8340
OR