Cardiovascular Connective Tissue Disorder Support
Cardiovascular connective tissue disorders are rare. Most people have never heard of conditions such as Marfan syndrome, Loeys-Dietz syndrome and Vascular Ehlers-Danlos syndromes. The Hoag Cardiovascular Connective Tissue Disorder Support Group provides an opportunity for patients living with a cardiovascular connective tissue disorder, their families and support network to connect. Discussion is focused on personal experiences, concerns, coping strategies and triumphs to reinforce education and decrease anxiety about living with a cardiovascular connective tissue disorder. This support group is facilitated by a clinical nurse navigator and genetic counselor from the Elaine & Robert Matranga Aortic Center.
This group will be held virtually via Zoom. Instructions on how to access Zoom and meeting login details will be provided through email confirmation, once participants have completed the registration process.
Virtual Support Group Acknowledgement
By registering for this community education virtual group, I acknowledge Hoag cannot guarantee the security and privacy of the virtual group or my environment. I understand Hoag has taken precautions to safeguard information shared during community education virtual groups to maximize the safety and cyber security of all participants. As with any virtual service, there are risks and benefits, associated with the use of technology; Benefits include the enablement of health care staff at different locations to provide safe, effective and convenient access to the group through the use of technology; Risks associated with the use of technology, include equipment failure, poor images and information security issues. Our goal is to protect the privacy of all individuals at Hoag. For this reason, you and any other people taking part in this community education virtual group, are not permitted to photograph, video, and/or audio record any part of the virtual group.
I understand that my participation in the virtual group does not establish a care treatment relationship and that everyone attending the virtual group may be able to see and hear each participant.
I understand I have the right to withdraw my consent to participate in a community education virtual group setting and to exit the virtual group at any time.
Location: Live Stream
Registration Type: Online Registration